Spare a Rose

Valentine’s Day, the day when probably more flowers are purchased than any other day of the year. This year, Spare a Rose, in support of children living with diabetes in developing countries in desperate need of supplies to live.

The Spare a Rose Campaign. Seth and I spared 2 Dozen roses this morning. Consider sparing what you can.

Spare a Rose

Diabetes Blog Week 2013 Day 2-Diabetes Petition(s)

Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change?

Whew! I can think of about 4 million petitions I’d like to write, but they can just about all be summed up by one topic: stop making a business out of my disease and it’s [potential] complications, and cure it. It’s disheartening when I read facts about how much money is spent on diabetes in the United States each year, when there are so many more productive ways that we could be spending research dollars. I wish there weren’t so many “politics, who knows who involved,” and it was more “bare bones, let’s get this done.” Maybe it is that way and I’m just not aware, but I don’t think so.

There are other petitions I’d like to write, to my devices or the drug I use to keep me alive. In general I am very thankful for the technology which enables me to manage my diabetes in a more healthy way, but it’s not like I’m dying to wear medical devices attached to me and take crappy drugs, therefore, another petition I’d like to write is to dear old insulin:

Dear Insulin,

First of all, I’d like to thank you for keeping me alive. While I appreciate (obviously) that you allow me to use you to stay alive, you kind of suck and should be further advanced than you are. You haven’t changed much, and now is the time. Managing diabetes is difficult enough, but when I have to take you [insulin] an hour and 15 minutes prior to eating a banana-it’s effing annoying and makes managing diabetes even more burdensome. I like bananas and potassium, just let me eat the damn thing! And then, dear insulin, where do you go when you don’t work? Are you lazy, are you crystallized in my pump site, are you just hanging out in scar tissue, or can you STEP IT UP FOR THE LOVE OF ALL THINGS DIABETES, I’M HUNGRY? And why do you sometimes work so well? Also, why are you only good for 28 days? You have no idea what a nightmare this is for refills, insurance hassles, pharmacists that don’t understand how to fill insulin prescriptions, etc.

Seriously, insulin, you’re slow, inconsistent, and just down right annoying! I petition to improve you.

Sincerely,

Hungry Type 1

Diabetes Blog Week 2013 Day 1-Share and Don’t Share

Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see?

Diagnosed in adulthood, and having lived with type 1 diabetes for 6 1/2 years, I feel as though I’ve been on auto-pilot for roughly the last 3 years. I don’t really worry much about my diabetes, it is what it is and tomorrow is a new day. Still, there are times when it just creeps up on you in the slightest of ways and you’re overwhelmed before you know it.

Fortunately, I have a great endocrinologist, and although I only see him once maybe twice a year, I know if I need him, he’s there. I still get bloodwork 3-4 times per year, ordered by my wonderful primary care manager to keep myself in check, and she also will send prescriptions if I need them. I’m lucky.

Though, if my team could peer into my diabetes life, I think I’d like for them to live in my shoes for the 1,440 minutes in the day that I’m thinking about my what my blood sugar is and what it’s doing…where it’s going, so they could see and feel how all-encompassing and totally consuming type 1 diabetes is. Although I’m on auto-pilot, it’s auto-pilot with everything that type 1 diabetes management demands slipped in anywhere and everywhere possible.

I’d like for my healthcare team to manage their health with everything else that life throws at them daily. Consistently maintaining their blood sugars between 80-180 the entire day (and the extra effort if it ventures beyond those Dexcom lines), while exercising once and maybe even twice, commute to and from work in rush hour traffic, have a stressful day at work, then head off to a meeting outside of work, still cook three healthy meals each day, then change their infusion site before bed, only to find that the new site hurts, having to change it 2 more times. And still be mentally coherent and stable at the end of it all. I’d like for them to see that management requires so much that they do not realize, and can’t possibly imagine without having lived with the disease.

I can’t think of anything that I wouldn’t want my healthcare team to see. For those that don’t know me, I’m a pretty open book, willing to share and connect to possibly help anyone I can.

Suite D Guest Post: Paleo and Type 1 Diabetes

I’m honored and excited to be guest posting on Suite D, OmniPod’s Diabetes Blog; a blog about living well with diabetes!

Read my first post about how living paleo has changed my life with diabetes, here: Living the Paleo Lifestyle with Type 1 Diabetes. I talk about finding your own paleo, how I started on the paleo journey, the different effects I see, and how it has transformed my life with diabetes.

 

Another Diabetes First

I guess times are a changing?

The last 24 hours have been full of restful sleep, stability, less finger pokes, and thankfulness for my Dexcom G4 Continuous Glucose Monitor.24 Hrs of Awesomeness

All of a sudden, I’ve noticed I’ve been checking my blood sugar far fewer times per day than I used to. This past Sunday, I had another diabetes first: I checked my blood sugar twice. TWICE! I racked my brain trying to think when it was that I last did that-and I don’t think I ever have done that! Maybe 4, but 2? This coming from the OCD super anal blood sugar tester (read average 12 times per day, since…forever).

The little tiny dried up bloody holes in my fingers are disappearing, it burns less when I cut citrus; my fingers are rejoicing.